Thursday, May 28, 2009

I'm a proud lil' bro!



Boy am I proud of my brother, Kayson! Today mommy, pamaw and I went to his end-of-the-year awards ceremony. He received an award for Academic Honors (which equates to ALL A's). He also was the ONLY 2nd grader to get both the medal for most Accelerated Reader (AR) points and achieving 25 points for AR per nine weeks. Yep that's right the only second grader in BOTH categories! Pretty awesome, right!? I sure hope that he helps me out when I'm bigger and in school. Way to go bro! I love you and I am so proud of you! I hope you saw me clapping my little hands for you today!

Wednesday, May 27, 2009

Wednesday, May 20, 2009

Beautiful Day!



Mom and I agree... everyday should be like today! It's just gorgeous! It was in the high 50s this morning and it's supposed to just get into the 80s this afternoon. We had a great lunch of hummus, crackers, apples and grapes. Yummo!

After lunch we checked the mail and played outside for a while. I decided to grab a cactus and I got a little thorn in my hand... but I think mommy got it out, hopefully! Hope you guys are all having a great day like me!

Super great!

Well everything went great last week with my VCUG. I didn't have to get an IV after all. Mom was confusing my VCUG with a renal scan! It was a pleasant surprise though because the VCUG is a much faster test, yay! The stinky part was that I had to have a catheter put into my boy part... ouch! They put some numbing cream on it first, so it wasn't so bad. Mommy couldn't stay in the room with me because of the x-rays. But daddy did great trying to make me as comfortable as possible. The test showed that I had no reflux, which is super great! My diverticulum (the little extra pocket off of my bladder) actually looked a tad smaller than when the test was done last year.

When I was all done the nurse gave me a cool handmade stuffed fish from the Blue Bird Auxiliary... pretty cool huh? I am not sure who that group is, but I think it's really cool that they care enough to make things for kids who have to be in the hospital..

After the test I went to see Dr. Bartholomew, my urologist, and he said that I don't have to come back for a whole year! Rock on!

Other than this I am doing super great! I am learning to eat with a fork, loving to be outside and pretty much am on the go every waking second. I'm so blessed!

Thursday, May 14, 2009

Thirsty Thursday...



If you haven't tried the fruit smoothies from Sonic, you should! My mommy got a strawberry banana one and I yelled until she gave it to me. Boy was I glad that I got it! It was delish!



Tomorrow I will have my VCUG done. This picture is from the last one I did in Oct. Please pray that all will go well and they'll get my IV in on the FIRST try! I'll let you know how it goes. This is a test done to check my kidney and my bladder function. I know everything is fine, I just have to reassure my docs!

Friday, May 8, 2009

My baby brother!

Mom and dad went to the perinatalogist on Monday. This is the same specialist that they went to when I was in mommy's tummy. They have chosen not to do any genetic testing or amniocentesis on the new baby, just like they didn't on me. BUT... so far everything appears to be normal! My little bro has two kidneys, a three-vessel cord, and his eye sockets look to be the correct size! So we are so thankful for that. We are leaving it all in God's hands and we're hoping for a healthy baby! They will continue to monitor him closely through level II ultrasounds... the next one is on June 1.

Wednesday, May 6, 2009

Monday, April 20, 2009

Springtime is here!



Wow! Yesterday we spent most of the day outside. We sure got a treat! We saw four of these beautiful painted bunting (the one with the red) birds and two indigo buntings at one time! They must really love our birdseed, because they came back for seconds! You guys may see these beauties all the time, but we don't... so we are just thrilled! We also got to see several kinds of hummingbirds and other beautiful birds enjoying our backyard. Then, to top it off, we had six deer at our feeder, WHILE WE WERE OUTSIDE! That's a first for us! It was hard for me to be quiet, but I did a great job. Papa and Nana even joined us and got to see our pretty birds and deer too!

Oh yeah about my spine. I had to have x-rays the other day of course (which was terrible) BUT the great news is that my spine has NOT gotten an worse!!! YAY! So I don't have to go back for 6 months!! We are just as happy as can be about this news!!!! Happy Monday to all!

Wednesday, April 15, 2009

This and that



This is an older picture of my dad and me. We're getting a nice fire going for mom (she LOVES fires!). Unfortunately mom's camera is broken, that's why there haven't been any new pictures lately.

Last week we went to see my eye surgeon, Dr. Fry. She was so thrilled at how great my eye looks! She said that she didn't want to do the stretching surgery for a couple of months. So we're going to keep moving forward with Mr. Wenske until then. We go to see him in a couple of weeks.

Today we're headed to my new scoliosis doctor, Dr. Kent Reinker. Dr. Stanley, my previous doc, is no longer on our insurance plan. So we'll see how things go today.



In the meantime... you MUST check out my brother's blog. He drew a family portrait and it is just fantastic! Please take a look! I hope that someday I am able to draw as well as he can! He is awesome!!!
Just click on K-Toons below and it'll take you there!

K-TOONS

Wednesday, April 8, 2009

Wednesday, April 1, 2009

Wednesday, March 25, 2009

Wordless Wednesday


Extreme Makeover, Blog edition!

Okay guys so what do you think of my new blog design?! I love it! My friend Jessica over at This That and Your Blog did it just for me! I feel so special! But, never fear she can do one for you too! She is really super great to work with (didn't mind when my mama asked a gazillion questions) and her prices are way beyond reasonable! And get this, she taught herself how to do it! Amazing, huh? She is a really cool college student who goes to our church and runs the youth program at the church on Wednesday evenings where my brother Kayson goes, it's called Kids of the Kingdom. You can read all about her adventures on her personal blog at This That and My Blog. Thank you from the bottom of my heart Jessica!! You rock!

Tuesday, March 10, 2009

All is well!

I am at home now and everything went well. The anesthesiologists were super nice and treated me as if I was their own child. A nice nurse even brought me a cute stuffed, super soft puppy dog to hold. I got to wear the usual purple hospital gown which is becoming more embarrassing as I get older, but at least it fits me a little better now! Dr. Fry found an infection in my eye socket, so I'll have to have medication for that, but it doesn't seem to be that big of a deal. Unfortunately, the conformer wouldn't quite fit, it was a bit too large. But after the surgery we went to Mr. Wenske's office and he was able to size it down and get it in with no problem at all. (Have I told you guys that he is the greatest!?!) The concern at this point is that my socket isn't expanding outward to the side like everyone had hoped. Don't get me wrong, we've come a LONG LONG way, but we need to get my bone expanded before I grow too big. There are a few options that could be the next plan of action, all require more surgery. One of the options is to put a silicon pouch in my eye and gradually add liquid to expand it. That's the only one I really remember, but I'll fill you guys in when I learn more. We'll meet with Dr. Fry in a few weeks to figure out what to do next. My mom forgot her camera so we've got no pictures, can you believe that? We were all very pooped this afternoon so we've been napping the afternoon away. My daddy isn't feeling well, and mom's just tired because we got up at 4:30 a.m.! Thank you all for your thoughts and prayers.

Monday, March 9, 2009

Tomorrow is the day...

Tomorrow morning I'll be back at University for surgery # 5 I think!? I will be getting a larger conformer. Dr. Fry will also check out the inside of my eye to make sure there are no strange things growing in there. If there is something she will remove it and also check on the progress of my expansion. I'm not too worried about it, but mom and dad always get a little nervous when they have to hand me over to the anesthesiologists. I'll be fine and I'll let you guys know how it went when I'm all done. If you can please say a little prayer for me. Thank you!

Sunday, March 1, 2009

Fun!


Daddy and I had a blast the other day. He was pushing me all over the house while I rode my little school bus!

Doctors!



On Thursday I had two appointments in SA. The first was with my nephrologist. She reviewed my renal scan and said that my solitary kidney was functioning great. She tried to take my blood pressure as you can see above, but I was so not having it! She is a bit concerned that I haven't grown in quite a while. She wants me to follow up with a couple of other doctors to check things out. So we'll see how that goes. Next I was off to see Mr. Wenske. I am getting a new larger conformer on March 10 when I'll be put under anesthesia. Mr. Wenske needed to take out my current conformer to make a mold of it so he can make my new one. Daddy, mommy, Connie and Mr. Wenske all had to hold me down to get it out and when it was out this is what my hair looked like! Pretty crazy huh? The great news is that he put my conformer back in my eye on his first try! We were all so thrilled!

Happy Birthday Daddy!



Ash Wednesday was my daddy's birthday. My great grandma and great popo brought daddy this super yummy strawberry pie/cake. My great popo also lifted me up to touch the fan lots of times and it was a lot of fun! My papa and nana took us out to dinner for Daddy's birthday too! I was a little fussy, but it's just because I was tired. I like the sweet potato fries though! My mom forgot her camera that night, that's why there's no pictures. We went to Johnny's BBQ and it was certainly a hot spot! There were a ton of people there and they all thought I was a cutie pie.

I'm too sexy (ahem cute) for my jammies!


This is usually how my mommy or daddy find me in the mornings!

Monday, February 16, 2009

Trying to eat with a spoon!


Well it ain't pretty but I am trying! As you can tell from my spotless face, I might need just a tad more practice with this spoon stuff! I am having a blast trying though!